Connect with Wilson Disease Association

Send Email

Physician Contacts

List of Physicians and Institutions in Your Area

View Contacts

Support Contacts

Individuals who can offer Support and Information

View Contacts


Stories of warriors touched by Wilson’s Disease and how they fought back by rallying people they know to walk with them and raise money for the patient registry.

View All Fundraising Campaigns

Ginta Ginaityte warrior

I had a life changing diagnosis of Wilson's disease at the age of 24. I received my official Wilsons Disease diagnosis November 3rd, 2016. It honestly took me a few months to grasp what I had just been diagnosed with; I felt relieved that I finally had an answer as to what was causing my symptoms. If it wasn't for my optometrist, I am not sure I would have ever been diagnosed. He noticed color differences in my eyes that were not normal. My symptoms were severe. I was too scared to go to the doctor as I was struggling to walk, talk and swallow.

Now, I feel ridiculous about avoiding the doctor. As a nurse, I encourage my patients not to ignore their symptoms on a daily basis.

My official diagnosis took only two weeks - how incredible! I had learned about Wilson's disease in nursing school, but never once thought I would be diagnosed.

I want to raise more awareness with this rare disease to save lives and hopefully some day find a cure!

Please come and support me and the Wilson's Disease Organization.



Pin It

Search Our Site