Connect with Wilson Disease Association

Send Email

Physician Contacts

List of Physicians and Institutions in Your Area

View Contacts

Support Contacts

Individuals who can offer Support and Information

View Contacts


Stories of warriors touched by Wilson’s Disease and how they fought back by rallying people they know to walk with them and raise money for the patient registry.

Ginta Ginaityte warrior

I had a life changing diagnosis of Wilson's disease at the age of 24. I received my official Wilsons Disease diagnosis November 3rd, 2016. It honestly took me a few months to grasp what I had just been diagnosed with; I felt relieved that I finally had an answer as to what was causing my symptoms. If it wasn't for my optometrist, I am not sure I would have ever been diagnosed. He noticed color differences in my eyes that were not normal. My symptoms were severe. I was too scared to go to the doctor as I was struggling to walk, talk and swallow.

Now, I feel ridiculous about avoiding the doctor. As a nurse, I encourage my patients not to ignore their symptoms on a daily basis.

My official diagnosis took only two weeks - how incredible! I had learned about Wilson's disease in nursing school, but never once thought I would be diagnosed.

I want to raise more awareness with this rare disease to save lives and hopefully some day find a cure!

Please come and support me and the Wilson's Disease Organization.



Pin It

Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Rachel Albert
Rachel Albert Vice President
Volunteering has been an important part of Rachel's life since childhood. Over the years, she has committed her time and energy to numerous non-profit organizations. She majored in psychology and graduated Magna Cum Laude from Amherst College. She also earned an M.P.H. in Geriatrics and Gerontology from Columbia University.
Jeanne A. Friedman
Jeanne A. Friedman
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

Search Our Site