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Stories of warriors touched by Wilson’s Disease and how they fought back by rallying people they know to walk with them and raise money for the patient registry.

 Kaelyn and Teagan Everham warrior

My 14 year old daughter Teagan, shown in the photo, was diagnosed with Wilson’s Disease at the age of 8.  

In the span of a year Teagan had easily fractured 3 bones so I asked our pediatrician to test her vitamins levels and test her for Lupus.  Her first blood work came back with her liver enzymes in the 200 range. Two weeks later we ran the tests again and the enzymes were in the 300 range.  We were sent to Seattle Children’s Hospital for an ultrasound which didn’t indicate a problem.  Two weeks later we went back to Children’s for an eye exam but there were no rings in her eyes.  A week later we went back for a liver biopsy which confirmed she had Wilson’s Disease and moderate damage to her liver.

Since being on Gluzin for the past 6 years and avoiding copper in her diet her disease is under control.  

We are so thankful for a wonderful pediatrician who stayed on top of things and especially having Children’s Hospital and Dr. Hahn so near by.  

Teagan is happily starting high school in September.



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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Rachel Albert
Rachel Albert Vice President
Volunteering has been an important part of Rachel's life since childhood. Over the years, she has committed her time and energy to numerous non-profit organizations. She majored in psychology and graduated Magna Cum Laude from Amherst College. She also earned an M.P.H. in Geriatrics and Gerontology from Columbia University.
Jeanne A. Friedman
Jeanne A. Friedman
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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