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Stories of warriors touched by Wilson’s Disease and how they fought back by rallying people they know to walk with them and raise money for the patient registry.

 Karl Dyczek Warrior

Out of no where, in February 2014, I had jaundice, a lack of appetite, and swelling in my abdomen, feet, and ankles. As a result, I was admitted to the hospital right away. I had to get a blood transfusion the night I was admitted. I spent three days at the hospital and was diagnosed there with cirrhosis of the liver. I was referred to a gastroenterologist and hematologist. After getting a liver biopsy, completing the hemochromatosis (I'm a carrier) and Wilson's Disease genetic mutation blood tests, and 24 hour urine test I was diagnosed in April 2014 with WD.

Although I have cirrhosis, I was not in need of a liver transplant like other WD patients. My liver function lab work is now in normal range. A brain MRI reflected no copper deposits in my brain.

As of last year, I have a little amount of copper in one of my eyes.  I am blessed and grateful to be doing much better nowadays.

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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Rachel Albert
Rachel Albert Vice President
Volunteering has been an important part of Rachel's life since childhood. Over the years, she has committed her time and energy to numerous non-profit organizations. She majored in psychology and graduated Magna Cum Laude from Amherst College. She also earned an M.P.H. in Geriatrics and Gerontology from Columbia University.
Jeanne A. Friedman
Jeanne A. Friedman
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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