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Stories of warriors touched by Wilson’s Disease and how they fought back by rallying people they know to walk with them and raise money for the patient registry.

Our family was hit hard in 2013 with 3 of our 4 kids being diagnosed with this deadly, life-altering disease. Since that time, we have had the sacred privilege of hearing story upon story of families that have been affected by WD. It is our deep desire to raise awareness of this rare and orphan disease, connect families that have or have been affected by WD, and of course to raise funds to further research for better medications for the future. My family and I invite anyone that wants to host a Big wow in their city to follow the link on this page for information and fill in the sign up form that will come to me.
Editor’s comment: Chris was the chairperson for the first two Big Wow fundraisers and is chairing again this year. Not only are Chris and his family warriors that are dealing with this disease but Chris is a warrior and champion raising funds for research and helping others do the same. Countless hours have been donated to this effort. Thank you Chris.
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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Rachel Albert
Rachel Albert Vice President
Volunteering has been an important part of Rachel's life since childhood. Over the years, she has committed her time and energy to numerous non-profit organizations. She majored in psychology and graduated Magna Cum Laude from Amherst College. She also earned an M.P.H. in Geriatrics and Gerontology from Columbia University.
Jeanne A. Friedman
Jeanne A. Friedman
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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