Wilson Disease Association 2019 conference: Trends and Innovations
Saturday, May 4, 2019 8:00am - 10:00pm
The New York Lotte Palace
455 Madison Ave
New York, New York 10022
Please join us at the Wilson Disease Association Annual Conference. This all-day event will feature medical professionals and educational presentations followed by question and answer sessions. Breakfast and lunch are included with your registration. Don't miss our banquet dinner and DJ on Saturday evening. Your children are welcome. There will be children's activities and meals. Spend the day learning and networking with clinicians, patients, researchers and caregivers.
If you are a WDA member, your member benefits include a free registration and a discounted banquet meal. However, you must register so we have an accurate head count.
Conference Registration Costs:
Free registration for members
$60 registration fee for non-members
Children under the age of 18 are free
$25 for the banquet dinner and DJ for members
$65 for the banquet dinner and DJ for non-members
Young adults between the ages of 20 and 30 will be entered in a special raffle to receive money off of their hotel room cost. Winners will be announced at the banquet dinner and must be present to receive their prize.
If your WDA membership is not current, and you would like to renew, you will be able to do so on the Conference ticketing page. If you are unable to register online or if you have any questions, please call Judi Keller at the WDA office 414-961-0533 extension 3000. All registrations must be received no later than April 24, 2019.
Register Now
Patient Conference Schedule of Topics
Session 1
The A,B,C’s of copper metabolism and pathophysiology of Wilson disease
Copper metabolism principles – Dennis Thiele, PhD
ATP7B and its relatives, how it works – Svetlana Lutsenko, PhD
Wilson disease pathology and pathophysiology – Uyen To, MD
Session 2
Diagnosis of WD – scoring system and genetic testing Peter Ferenci, MD
Treatment of WD – chelation therapy – d Pen, trien, TM - Karl Heinz-Weiss, MD
Treatment of Wilson disease - zinc – Michelle Camarata, MD
Panel for session 1 and 2 Moderators: Regino Gonzalez- Peralta, MD and Fred Askari, MD, PhD
Guest lecture at lunch - Prospects for gene therapy Bernard Benichou, MD
Session 3
What it means to be in a clinical trial – Ricarda Tomlin, Research Director Yale Transplant
Medication coverage and partnerships Elizabeth Cohen, Pharm D.
Diet and Wilson disease – Anne Marie Rivard, RD
Panel for session 3 Moderator: Tamir Miloh, MD
Session 4
Tremor and Wilson disease - Amar Patel, MD
Mood disorder and Wilson disease – Paula Zimbrean. MD
Hepatic complications of Wilson disease – Aftab Ala, MD PhD
Session 5
fMRI and WD – pilot study – Keerthana Nalamada, MD
Registry and Clinical trials for WD – Michael L. Schilsky, MD
Panel for session 4, 5 Moderator: Karl Heinz-Weiss, MD
