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2019 Annual Conference
May 4, 2019
New York City

Wilson Disease Association 2019 conference: Trends and Innovations

We Are Wilsons Logo high res

Saturday, May 4, 2019  8:00am - 10:00pm

The New York Lotte Palace
455 Madison Ave
New York, New York 10022

Please join us at the Wilson Disease Association Annual Conference. This all-day event will feature medical professionals and educational presentations followed by question and answer sessions. Breakfast and lunch are included with your registration. Don't miss our banquet dinner and DJ on Saturday evening. Your children are welcome. There will be children's activities and meals. Spend the day learning and networking with clinicians, patients, researchers and caregivers.

If you are a WDA member, your member benefits include a free registration and a discounted banquet meal. However, you must register so we have an accurate head count.

Conference Registration Costs:

Free registration for members

$60 registration fee for non-members

Children under the age of 18 are free

$25 for the banquet dinner and DJ for members

$65 for the banquet dinner and DJ for non-members

Young adults between the ages of 20 and 30 will be entered in a special raffle to receive money off of their hotel room cost. Winners will be announced at the banquet dinner and must be present to receive their prize.

If your WDA membership is not current, and you would like to renew, you will be able to do so on the Conference ticketing page. If you are unable to register online or if you have any questions, please call Judi Keller at the WDA office 414-961-0533 extension 3000. All registrations must be received no later than April 24, 2019.

Register Now

Patient Conference Schedule of Topics

Session 1

The A,B,C’s of copper metabolism and pathophysiology of Wilson disease

Copper metabolism principles – Dennis Thiele, PhD

ATP7B and its relatives, how it works – Svetlana Lutsenko, PhD

Wilson disease pathology and pathophysiology – Uyen To, MD

Session 2

Diagnosis of WD – scoring system and genetic testing Peter Ferenci, MD

Treatment of WD – chelation therapy – d Pen, trien, TM - Karl Heinz-Weiss, MD

Treatment of Wilson disease - zinc – Michelle Camarata, MD

Panel for session 1 and 2 Moderators: Regino Gonzalez- Peralta, MD and Fred Askari, MD, PhD

Guest lecture at lunch - Prospects for gene therapy Bernard Benichou, MD

Session 3

What it means to be in a clinical trial – Ricarda Tomlin, Research Director Yale Transplant

Medication coverage and partnerships Elizabeth Cohen, Pharm D.

Diet and Wilson disease – Anne Marie Rivard, RD

Panel for session 3 Moderator: Tamir Miloh, MD

Session 4

Tremor and Wilson disease - Amar Patel, MD

Mood disorder and Wilson disease – Paula Zimbrean. MD

Hepatic complications of Wilson disease – Aftab Ala, MD PhD

Session 5

fMRI and WD – pilot study – Keerthana Nalamada, MD

Registry and Clinical trials for WD – Michael L. Schilsky, MD

Panel for session 4, 5 Moderator: Karl Heinz-Weiss, MD


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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Rachel Albert
Rachel Albert Vice President
Volunteering has been an important part of Rachel's life since childhood. Over the years, she has committed her time and energy to numerous non-profit organizations. She majored in psychology and graduated Magna Cum Laude from Amherst College. She also earned an M.P.H. in Geriatrics and Gerontology from Columbia University.
Jeanne A. Friedman
Jeanne A. Friedman
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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