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About WDA
Who We Are

Our Mission

The WDA provides support and hope to people impacted by Wilson disease worldwide so that they may lead the best quality life possible.

Our Vision

The WDA aspires to unmask the challenges of Wilson disease and unleash the promise of a cure.


Stewardship, Expertise, Trust, Fiscal Responsibility, Compassion, Innovation, Perserverance

Your WDA membership is important. There is power in numbers. We would like to see our membership grow to encompass all affected by Wilson disease, worldwide. When we speak out about Wilson disease to media, pharma, congress, medical and other organizations, our voice will be strong as one and our message will be clear.

As a member, you have the opportunity to communicate your concerns, share your experiences, learn about the most recent advances in Wilson disease treatment and research, and contribute to important decisions that need to be made so the WDA can be a strong patient advocacy group.

Member Rights 

When you choose one of the membership levels on the Membership Form, in addition to the benefits listed for each level, you are entitled to:

  • vote in annual elections.
  • vote on proposed changes to the WDA Bylaws.
  • seek nomination to be a member of the WDA Board of Directors.
  • access to your member profile and donation history at  
  • access to a "Members Only" area on the WDA website.

Types of Membership 

The membership of the WDA consists of Members, Honorary Members, Organizational Members, and Professional Members.


There shall be no more than five membership categories, as established by the Board of Directors. Members of WDA have the right to vote. The Board of Directors prescribes membership dues. Any person who makes application and pays the prescribed dues is a member.

*Persons and family members affected by Wilson disease who are unable to pay dues but notify the WDA of their desire to be counted as members have regular membership status. If you are unable to pay dues, please fill out the renewal application with a note to that effect. You will be put on the membership list.

Honorary Members 

Honorary membership is extended to people who have rendered outstanding service on behalf of persons with Wilson disease. All Honorary Members are elected by the Board of Directors. Such members pay no dues, have no vote, and are not eligible to hold office.

Organizational Members

Organizations interested in activities related to the purpose of the Association may, upon application and payment of prescribed dues, be elected to organizational membership by the Board of Directors. Such members have one vote if a non-profit organization and no vote if a for-profit organization. Organizational members are not eligible to hold office. Each organizational member designates one individual as its representative.

Professional Members 

Physicians and other health care professionals who pay dues at the professional rate have the same privileges of membership as an individual member.

Term of Membership

Membership in the WDA is for a term of one year, from January 1 through December 31 of each year. Dues are due and payable on January 1st each year. Members who join for the first time after September 1st remain in good standing through December 31 of the following year.

At the end of one year membership, renewal notifications are mailed. The WDA does not provide membership cards. If you are unable to pay dues, please fill out the renewal application with a note to that effect. You will be put on the membership list.


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