Wilson Disease Support Contacts
Here is a listing of individuals who can offer support and information to those living with Wilson disease and their families. If you are willing to offer support to those in your area, please contact us at info@wilsonsdisease.org
Argentina
Dadour V. Dadourian
Adresss: 14 de Julio 1526
Buenos Aries (CP: C1430ENB), Argentina
Home Phone: +54 (11) 4552-8556
Cell Phone: +54 (911) 5577-7293
Email: losdadourian@arnet.com.ar
Australia
Dalia Mikha
Fax: +61 (03) 9359 4980
TTY (only AU): 133677 + (03) 93594980
Susan Kuiper
Phone: +61 (0)408972185
Email: fiery_wa@hotmail.com
Belinda Starr
Phone: +61 (0) 429857445
Email: davsta4@bigpond.com
Austria
Morbus Wilson Selbsthilfegrouppe
C/O Susanne Danziger
Cumberlandtstr. 12
A-1140 Vienna, Austria
Phone/Fax: + 43 (1) 894 27 19
Email: kontakt@morbus-wilson.at
Website: www.morbus-wilson.at
Brazil
Associacaio Brasileira dos doentes de Wilson
Sonia Knopf / Maria Aparecida Mesquita Ribeiror
Haddock Lobo, 250 – ap. 305
CEP 01414-000
Brazil
Phone: (55-11) 3214-5520
Fax: (55-11) 3824-7666
Email: associacao@doencadewilson.org
Brazil
Lucio Mazza
Av. Brigadeiro Luis Antonio, 2791 apto 112
01401-000, Sao Paulo, SP Brazil
Phone: 5511-3057-1572
Email: lmazza@uol.com.br
Bulgaria
Bulgarian Association Wilson's Disease (BAWD)
Ivelina Ivanova
Sofijski geroj Str., bl.116, ent.A, ap. 6
Sofia 1612
Mob: +359 (0) 897 99 35 65
E-mail: info@wilsonbg.org
Web: www.wilsonbg.org
Canada
Jean Perog
Box 21
Quilchenna, British Columbia V0E 2R0
Canada
Phone: (251) 372-2271
Email: jperog@telus.net
Darlene T. Burton
5 Woodbury Drive
Dartmouth, Nova Scotia
B2V 2R6
1-902-462-3789
Email: darlene.burton@nscc.ca
Costa Rica
Ms. Carolina Alfaro Jimenez
Urb. La Estrella, casa 40-A
Detras de Tica Linda,
Frente a la Fosforera
Heredia
Phone: (506)815-75-65
Email: carolinaalfaro@hotmail.com
Croatia
Ivana Pijevic
Email: ivanapijevic@yahoo.com
Denmark
Wilson Disease Patient Association
Torben Groennebaek, President
Email: info@wilsons.dk
Website: www.wilsons.dk
Egypt
Sameh Fouad
Email: Samehfouad2@yahoo.com
Cell Phone: 0020110577700
Skype: Thsales135
Germany
Wilson Disease Organization
Morbus Wilson e.V.
Geschaftsstelle
Meraner Strabe 17
D-83024 Rosenheim
Germany
Phone: +39 8031 249230
Fax: +49 8031 43876
Email: morbus.wilson@t-online.de
Website: www.morbus-wilson.de
Stefan Sandler
Elias-Eller-Str. 146
D-42369 Wuppertal
Germany
Phone: +49 202 2822 402
Fax: +49 202 2822-445
Email: sandler@paritael-nrw.org
Beate Rasp
Verein Morbus Wilson e.V.
Leiblstraße 2
83024 Rosenheim
Tel. : +49 (0)8031-249230
Fax.: +49 (0)8031-43876
Email: morbus.wilson@t-online.de
Web: www.morbus-wilson.de
India
Dr. D.P. Pande, Ph.D., President, WISDOM
Voice mail / Phone: 91-22-2559 5515 (3:00 – 4:00 p.m.) or 2557 2947 (8:00 – 9:00 p.m.)
Email patient support: indiawisdom@yahoo.com
Email research collaborations: indiawisdom@hotmail.com
Dhawalgiri 17A
Anushakti Nagar PO
Mumbai 400094
India
Dr. Ashish Sabharwal
B-70, Greenwood City
Sector 45, Gurgaon
HARYANA -122001
Phone: 91-124-4223330
Cell: 91-9811155001
Email: drashishsaabharwal@gmail.com
E-mail: pedliver@gmail.com
Clinics for Wilson's Disease Patients:
Monday, Wednesday and Friday: (4:00 p.m. to 6:00 p.m.)
For appointments, phone: 91-22- 24222160 (after 4 pm)
Dr. Aabha Nagral,
Consultant Adult and Pediatric Hepatologist
O-18, Bhavna Building 2nd floor
Veer Savarkar Road
Prabhadevi Clinic
Mumbai-400025
India
Republic of Moldova
Natalie Vozian
B-dul. Decebal 82/2, ap. 123
MD-2038 Chisinau
Republic of Moldova
Phone: +373 22 530290
Mobile: +373 69 372638
Email: nati_vozian@yahoo.com
Pakistan
Sanam Noor
B/17 Jason VIP Apptts.
Boat Basin, Clifton, Karachi
Sindh, Pakistan
Phone: 92-334-3053574
Email: wdsgpak@yahoo.com
Phillipines
Vilma C. Dee.
066 Sto. Nino St.
Carmencita Village
Talon 3
Las Pinas City 1701
Phillipines
Phone: (632) 9062917795
Office Phone/Fax (632) 8058180
Email: wdphils@hotmail.com
Web: http://wdacenter.110mb.com
Romania
Adela Sandler
Elias-Eller-Str. 146
D-42369 Wuppertal
Germany
Phone: +49 202 2986437
Email: andler@paritael-nrw.org
Monica Toth
Str. Nucului nr. 13, bloc. B5, ap.6
551112 Medias Romania
Phone: +40 269 845136
Email: monica_toth@yahoo.com
Website: www.wda-romania.org
South Africa
Pauline Castellan
Email: castellan@telkomsa.net
United Kingdom
Linda Hart
36 Audley Drive
Beeston, Nottingham
NG92SF
Phone: 0115 8498803
Email: Linda@wilsonsdisease.org.uk and Linda.hart37@ntlworld.com
Mrs. Valerie Wheater
(also for information regarding genealogy)
38 Grantchester Road, Cambridge
CB3 9ED
Website: www.wilsonsdisease.org.uk/
United States
George Feldmann
301 Oxford Drive
Bismarck, ND 58504
Phone: 701-751-3244
Email: georgefeldmann@yahoo.ca
Len Pytlak
180 Little Lake Drive, Suite 3
Ann Arbor, MI 48103
Phone: 734-663-1313
Email: len@lenpytlakcpa.com
Lenore and Russell Sillery
152 Cheese Spring Road
Wilton, CT 06897
Phone: 203-249-7854
Email: lsillery@sillery.com
Rob Stall MD
Buffalo, NY
Phone: 716-861-1312
Email: drstall@stallgeriatrics.com
Website: http://stallgeriatrics.com/wd/ |
