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Wilson Disease Centers of Excellence

The WDA Centers of Excellence provide physicians who are well trained in the diagnosis and treatment of Wilson's Disease, physician training and research regarding Wilson disease, broad services needed by Wilson Disease patients and their families, and technical support required by patients (including laboratory metal analysis).

India - K.E.M. Hospital
Director - Dr. Ashish Bavdekar
Associate Professor
Consultant Pediatric Gastroenterologist
Liver and Gastroenterology Unit
Department of Pediatrics
T.D.H. Building, Ground Floor
K.E.M. Hospital, Rasta Peth
Pune 411011
India
Phone: 91-20-66037342
Mobile: 98220 56174
Fax: 91-020-26125603
E-mail: kemhrc@vsnl.net or bavdekar@vsnl.com
Clinics for Wilson Disease:
Mondays and Thursdays 11:00 a.m. - 1:00 p.m.
Other Team Members: Dr. Suhas Wagle – Hepatology; Dr. Ashish Bavdekar – Pediatrics, Hepatology & Hepatic Transplantation; Dr. Pradeep Diwate – Movement Disorders & Neurology; Dr. Shrikant Kelkar – Ophthalmology; Dr. Vasudeo Parlikar – Psychiatry; Mrs. Vaishali Madkaikar – Dietitian; Dr. Arati Chaudhari & Mrs. Bharati Patil – Physical and Rehabilitation Therapy; Dr. Shruti Inamdar – Research Coordinator; Mr. Mahendra Hoge – Social Work; Ms. S Deshpande – Speech Therapy; Dr. Manoj Matnani – Pediatric Nephrology; Dr. Koumodi Godbole – Clinical Geneticist; Dr. Samir Desai – Pediatric Orthopedic Surgeon; Ms. Madhavi Deshpande – Clinical Psychology.

India – Mumbai
Director - Dr. Aabha Nagral,
Consultant Adult and Pediatric Hepatologist
O-18, Bhavna Building 2nd floor
Veer Savarkar Road
Prabhadevi Clinic
Mumbai-400025
India
E-mail: pedliver@gmail.com
Clinics for Wilson Disease Patients:
Monday, Wednesday and Friday: (4:00 p.m. to 6:00 p.m.)
For appointments, phone: 91-22- 24222160 (after 4 pm)

Other Team Members: Dr. Aahba Nagral – Hepatic Transplantation; Dr. Pettarusp Wadia & Dr. Girish Nair – Movement Disorders & Neurology; Dr. Kanti Mody & Dr. Girija Soresh – Ophthalmology; Dr. Fazal Nabi – Pediatrics; Dr. Amit Desai – Psychiatry; Suvarna Sawant – Dietitian; Dr. Ria Mansukhani – Physical and Rehabilitation Therapy; Dr. Priya Malde – Research Coordinator.

Northwestern University
Director
Richard M. Green, MD
Chief, Division of Hepatology
Associate Professor of Medicine
Feinberg School of Medicine
675 N St Clair St. Suite 14-100
Chicago, IL 60611
Phone: 312-503-4667
Fax: 312-908-6192
E-mail: r-green2@northwestern.edu
Appointments: Debra Murray, RN
Phone: 312-695-6655
Fax: 312-695-0042
 
Other Team Members: John E. Franklin, MD -- Associate Professor in Psychiatry and Behavioral Sciences and Surgery; Michael M. Abecassis, MD – Director, Comprehensive Transplant Center, Chief, Division of Surgery-Organ Transplantation; Onur Melen, MD – Assistant Professor of Neurology and Ophthalmology; Peter F. Whitington, MD – Professor of Pediatrics and Medicine; Judy Fitzhugh, RD. LDN, CNSD – Dietitian; Santiago Toledo, MD – Assistant Professor in Physical Medicine and Rehabilitation; Karen Williams, BA – Research Coordinator; Diane B. Breslow, LCSW, MSW – Social Work; Kirstin A. Larsen, MA, SLP – Speech Therapy.

University of California at Los Angeles
Director - Jeff Bronstein, MD, PhD; Coordinator – Henrietta Salazar
UCLA Neurology Department
710 Westwood Plaza Suite C128
Los Angeles, CA 90095-1769
Phone: (310) 794-2158
Fax: (310) 206-9819
E-mail: jbronste@ucla.edu
Other Team Members: Jorge Vargas, MD – Hepatology and Hepatic Transplantation; Arik Johnson -- Psychologist

University of Michigan Hospital
Director - Fred Askari, M.D., Ph.D.
Associate Professor
Liver Clinic
Pod D, 3rd Floor Taubman
Ann Arbor, MI 48109-0352
Phone: (734) 936-0499
Fax: (734) 763-4574
Appointments: Contact Patti Paulin, RN at 800-395-6431, Option 2
E-mail: faskari@umich.edu
Other Team Members: Matthew Lorincz, MD, PhD – Movement Disorders and Neurology (adult); Martha Carlson, MD, PhD – Movement Disorders, Neurology, and Pediatrics; Jonathon D Trobe, MD – Ophthalmology; Becky De Keyser, MPH, RD, CNSC – Dietitian; Pamela Van Buren, OTR – Physical and Rehabilitation Therapy; Sue Pellerito, MSW – Social Work; Karen Kluin, MS, CCC, BC-NCD – Speech Therapy

Yale University Medical Center
Dr. Michael Schilsky, Director
Yale University School of Medicine
333 Cedar Street/1080 LMP
P.O. Box 208019
New Haven, CT 06520-8019
E-Mail: Michael.schilsky@yale.edu
Fed Ex Address:
One Gilbert Street
FMP Bldg., Room FMP 408
New Haven, CT 06519
Assistant: Ms. Donna Christensen phone: 203-737-1592   fax: 203-785-6645

Other Team Members :Sukru Emre M.D. – Chief Section of Transplantation and Immunology, Chief Adult and Pediatric Liver Transplant; Richard Rosencrantz M.D. – Pediatric Hepatologist, Pediatric Transplant Hepatologist; Bahman Jabbari M.D. – Movement Disorder Specialist, Neurology; Martin Drooker M.D., Paula Zimbrean M.D. – Psychiatrists; Kisha Mitchell M.D. – Liver Pathologist; Danielle Jacques – Research Coordination (Director; Lenore Hammers LCSW – Adult Social Worker, Michael Joyce LCSW – Pediatric Social Worker; Anne Marie Rivard NPH RD- Registered Dietician

 

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