Administration

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Physician Contacts

List of Physicians and Institutions in Your Area

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Support Contacts

Individuals who can offer Support and Information

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About WDA
Who We Are

Our Mission

The Wilson Disease Association funds research and facilitates and promotes the identification, education, treatment, and support of patients and other individuals affected by Wilson disease.

Our Vision


Our vision is to be recognized for excellence as an international, non-profit health organization.

Support

The WDA provides a caring community that will offer each Wilson disease family information, guidance and emotional support. We are dedicated to education, advancing treatments, and finding a cure for Wilson disease.

Here is a listing of individuals who can offer support and information to those living with Wilson disease and their families.  If you are willing to offer support to those in your area, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.

Argentina

Dadour V. Dadourian
Adresss:  14 de Julio 1526 
Buenos Aries (CP: C1430ENB), Argentina
Home Phone:  +54 (11) 4552-8556
Cell Phone:  +54 (911) 5577-7293
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Australia



Dalia Mikha
Fax: +61 (03) 9359 4980
TTY (only AU): 133677 + (03) 93594980
Susan Kuiper
Phone: +61 (0)458655029
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Belinda Starr
Phone: +61 (0) 429857445
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Austria



Morbus Wilson Selbsthilfegrouppe
C/O Susanne Danziger
Cumberlandtstr. 12
A-1140 Vienna, Austria
Phone/Fax: + 43 (1) 894 27 19
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: www.morbus-wilson.at

Brazil



Associacaio Brasileira dos doentes de Wilson
Sonia Knopf / Maria Aparecida Mesquita Ribeiror
Haddock Lobo, 250 – ap. 305
CEP 01414-000
Brazil
Phone:  (55-11) 3214-5520
Fax:  (55-11) 3824-7666
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.


Lucio Mazza
Av. Brigadeiro Luis Antonio, 2791 apto 112
01401-000, Sao Paulo, SP  Brazil
Phone:  5511-3057-1572
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Bulgaria



Bulgarian Association Wilson's Disease (BAWD)
Ivelina Ivanova
Sofijski geroj Str., bl.116, ent.A, ap. 6
Sofia 1612
Mob: +359 (0) 897 99 35 65
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.wilsonbg.org

Canada



Jean Perog
#34- 1901 Maxwell Ave
Merritt, British Columbia V1K 1L9
Canada
Phone: (250) 315-1832
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Darlene T. Burton
5 Woodbury Drive
Dartmouth, Nova Scotia
B2V 2R6
1-902-462-3789
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Costa Rica



Ms. Carolina Alfaro Jimenez
Urb. La Estrella, casa 40-A
Detras de Tica Linda,
Frente a la Fosforera
Heredia
Phone: (506)815-75-65
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Croatia



Ivana Pijevic
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Denmark


Wilson Disease Patient Association 
Lisbet Ottesen, President
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.
Website:  www.wilsons.dk

Egypt



Sameh Fouad
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.
Cell Phone: 0020110577700
Skype:  Thsales135

Germany



Wilson Disease Organization
Morbus Wilson e.V.
Geschaftsstelle
Meraner Strabe 17
D-83024 Rosenheim
Germany
Phone: +39 8031 249230
Fax:  +49 8031 43876
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.
Website:  www.morbus-wilson.de

Stefan Sandler
Elias-Eller-Str. 146
D-42369 Wuppertal
Germany
Phone: +49 202 2822 402
Fax:  +49 202 2822-445
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Beate Rasp 
Verein Morbus Wilson e.V.
Leiblstraße 2
83024 Rosenheim
Tel. : +49 (0)8031-249230
Fax.: +49 (0)8031-43876
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.">This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: http://www.morbus-wilson.de/">www.morbus-wilson.de

India


 
Dr. D.P. Pande, Ph.D., President, WISDOM
Voice mail / Phone: 91-22-2559 5515 (3:00 – 4:00 p.m.) or 2557 2947 (8:00 – 9:00 p.m.)
Email patient support: This email address is being protected from spambots. You need JavaScript enabled to view it.
Email research collaborations:  This email address is being protected from spambots. You need JavaScript enabled to view it.
Dhawalgiri 17A
Anushakti Nagar PO
Mumbai 400094
India

Dr. Ashish Sabharwal
B-70, Greenwood City
Sector 45, Gurgaon
HARYANA -122001
Phone:  91-124-4223330
Cell:  91-9811155001
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it. 
Clinics for Wilson's Disease Patients:
Monday, Wednesday and Friday: (4:00 p.m. to 6:00 p.m.)
For appointments, phone: 91-22- 24222160 (after 4 pm)
Dr. Aabha Nagral,
Consultant Adult and Pediatric Hepatologist
O-18, Bhavna Building 2nd floor
Veer Savarkar Road
Prabhadevi Clinic
Mumbai-400025
India

DIP SHROT 

contact : 7209295501 (priority)

              7209891734

address : q.no. 33/1/5, chhota govindpur,jamshedpur,jharkhand,india.

facebook : https://www.facebook.com/dip.shrot.50

Republic of Moldova



Natalie Vozian
B-dul. Decebal 82/2, ap. 123
MD-2038 Chisinau
Republic of Moldova
Phone: +373 22 530290
Mobile:  +373 69 372638
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Pakistan



Sanam Noor
B/17 Jason VIP Apptts. 
Boat Basin, Clifton, Karachi
Sindh, Pakistan
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Irfana Jabeen Khan
Karachi, Pakistan
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  
Mobile: 021 03369209203

Phillipines



Vilma C. Dee.
066 Sto. Nino St.
Carmencita Village
Talon 3
Las Pinas City 1701
Phillipines
Phone: (632) 9062917795 
Office Phone/Fax (632) 8058180
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: http://wdacenter.110mb.com

Puerto Rico



Daniel Diaz Rubayo DMD 
Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 
787-948-9386 (personal cellphone number) 
San Juan, Puerto Rico

Romania



Adela Sandler
Elias-Eller-Str. 146
D-42369 Wuppertal
Germany
Phone:  +49 202 2986437
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Monica Toth
Str. Nucului nr. 13, bloc. B5, ap.6
551112 Medias Romania
Phone:  +40 269 845136
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.
Website:  www.wda-romania.org

South Africa



Pauline Castellan
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

United Kingdom



Linda Hart
36 Audley Drive
Beeston, Nottingham
NG92SF
Phone:  0115 8498803
Email: This email address is being protected from spambots. You need JavaScript enabled to view it. and This email address is being protected from spambots. You need JavaScript enabled to view it.

Mrs. Valerie Wheater
(also for information regarding genealogy)
38 Grantchester Road, Cambridge
CB3 9ED
Website:  www.wilsonsdisease.org.uk/

United States

Ahsan Ahmad
New Haven, CT 06511
Phone: 630-857-0852
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.


George Feldmann
300 S. Bryan Road Unit N-9
Mission, Texas 78572
Phone: 956-519-5296
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Len Pytlak
180 Little Lake Drive, Suite 3
Ann Arbor, MI  48103
Phone:  734-663-1313
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Lenore and Russell Sillery
152 Cheese Spring Road
Wilton, CT  06897
Phone:  203-249-7854
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Rob Stall MD
Buffalo, NY
Phone: 716-861-1312
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.
Website:  http://stallgeriatrics.com/wd/

Pin It

Mary L. Graper
Mary L. Graper President
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She has also served as Vice-President and Treasurer.
Jean P. Perog
Jean P. Perog Treasurer
Mrs. Perog is a retired CPA living in Quilchena, British Columbia. She has WD and has a brother with WD. Jean has served as Treasurer of the WDA since 2005.
Help us to promote the well being of patients with Wilson disease and their families and friends.