Support Contacts

Here is a list of individuals who can offer support to Wilson's Disease patients and families. To link to a listing of physicians and institutions familiar with Wilson's Disease and/or that accept Wilson's Disease patients, CLICK HERE. To link to a listing of the WDA Centers of Excellence, CLICK HERE.

Australia

Dalia Mikha
Fax: +61 (03) 9359 4980
TTY (only AU): 133677 + (03) 93594980
Email: lili_ms_scorpion_ilil@yahoo.com or
blackdahlia@iprimus.com.au

Susan Kuiper
Phone: +61 (0)408972185
Email: fiery_wa@hotmail.com

Belinda Starr
Phone: +61 (0)429857445
Email: davsta4@bigpond.com

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Austria

Morbus Wilson Selbsthilfegruppe
c/o Susanne Danziger
Cumberlandtstr. 12
A-1140 Vienna
Austria
Phone/Fax: +43 1 894 27 19
E-mail: kontakt@morbus-wilson.at
Web site: www.morbus-wilson.at

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Brazil

Associacaio Brasileira dos doentes de Wilson
Sonia Knopf / Maria Aparecida Mesquita Ribeiro
r. Haddock Lobo, 250 - ap.305
CEP 01414-000
Brazil
Phone: (55-11) 3214-5520
Fax:  (55-11) 3846-7666
E-mail: associacao@doencadewilson.org

 

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Canada

George Feldmann
1109-110 Adamar Rd.
Winnipeg, Manitoba R3T 3M3
Canada
Phone: (204) 282-3561
E-mail: feldmann@mts.net

Jean Perog
Box 21, Quilchena, British Columbia V0E 2R0
Canada
Phone: (250) 372-2271
E-mail: jperog@telus.net

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Denmark

Wilson's Disease Patient Association
Torben Groennebaek, President
E-mail: info@wilsons.dk
Web site: www.wilsons.dk

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Germany

Wilson’s Disease Organization
Morbus Wilson e.V.
Geschäftsstelle
Meraner Strabe 17
D-83024 Rosenheim
Germany
Phone: +49 8031 249230
Fax: +49 8031 43876
E-mail: info@morbus-wilson.de
Web site: http://www.morbus-wilson.de

Stefan Sandler
Gansbusch 12
D-42369 Wuppertal
Germany
Phone: +49 202 2986437
Fax: +49 202 2822-445
E-mail: sandler@wilsonsdisease.org

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India

Dr. D.P. Pande, Ph.D., President, WISDOM
Voice mail/Phone: 91-22- 2559 5515 (3:00 p.m. to 4:00 p.m.) or 2557 2947 (8:00 p.m. to 9:00 p.m.)
E-mail patient support: indiawisdom@yahoo.com
E-mail research collaborations:                                  indiawisdom@hotmail.com
Dhawalgiri 17A
Anushakti Nagar PO
Mumbai 400094
India

Netherlands

Wilson's Disease Association
Peter van Poppel
E-mail: pcpoppel@wanadoo.nl or zeiktevanwilson@go.to
Web site: http://home.wanadoo.nl/~pcpoppel/ or http://www.go.to/ziektevanwilson

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New Zealand

Bethli Wainwright
5A Eyre Street, Henderson Heights
Auckland
New Zealand
Phone: (H) (+64 9) 836-7107
Fax: (+64 9) 836-7104
E-mail: ptoli@ihug.co.nz

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Phillipines

Vilma C. Dee
066 Sto. Nino St.
Carmencita Village
Talon 3, 
Las Pinas City 1701
Phillipines
Phone: (632) 805-8180
Fax: (632) 837-9323  
E-mail: wdphils@hotmail.com

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Romania

Mihaela Suta
Calea Vitan nr. 219, bl. 10, parter, ap. 67
031291 Bucharest, Sector 3
Romania
Phone: +40 743 409576
E-mail: katiusha20@yahoo.com
Web site: http://www.wda-romania.org

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South Africa

Pauline and Remo Castellan
P.O. Box 73106
Fairland
2030
Johannesburg
South Africa
Phone/Fax: (+27) 11-4762577
E-mail: castellan@freemail.absa.co.za

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Spain

Conchi Casas
C/ Juan de Valladolid 4, 1° D
47014 Valladolid
Spain
Phone: 983-372150
E-mail: wilsons@teleline.es

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Switzerland

Morbus Wilson Kontaktgruppe Schweiz
Simon Ramseier, M.D.
Seminarstr. 27
CH - 5400 Baden
Switzerland
E-mail: kontakt@morbus-wilson.ch
Web site: www.morbus-wilson.ch

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United Kingdom

Dr. Caroline Simms, Ph.D.
36 Sunningdale Drive, Woodborough
Nottingham. NG14 6EQ
United Kingdom
E-mail: carolinesimms@hotmail.com
Web site: www.wilsons-disease.org.uk

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United States

Len Pytlak
Len Pytlak, CPA, P.C.
180 Little Lake Drive
Suite 3
Ann Arbor, MI 48103
Phone: 734-663-1313
E-mail: len@lenpytlakcpa.com

Lenore and Russell Sillery
152 Cheese Spring Rd.
Wilton, CT 06897
Phone (home): 203-762-2372
Phone (work): 203-961-9993
E-mail: lsillery@sillery.com

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