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Our lives were turned upside down when our daughter Shaylee, at age 5, was diagnosed with Wilson's Disease on January 15, 2016.

She has been in and out of the hospital with illnesses and no diagnoses. Her liver enzymes were off the charts with no explanation. Finally with some pushing from mom the doctors were willing to listen to her concerns and do a liver biopsy.  The doctors didn't know much about Wilsons Disease and when she was diagnosed with it we were sent to Children's Hospital of Milwaukee.  

Shaylee is now 7 and doing well.  She eats a well balanced low copper diet, medication to chelate her liver and vitamins to replace the ones that are low due to the medication.    

We want to help educate others about this rare disease.

 

 

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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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