Our family was touched unexpectedly by Wilson’s Disease on Christmas Day 2015 when my oldest daughter suddenly began showing signs of liver failure. She was admitted to the hospital and experienced numerous complications before passing away on January 19, 2016. Due to the complications and the advanced liver and kidney failure, we did not receive a diagnosis of Wilson’s Disease until after she died. Elise was 12 years old.
After her death and diagnosis, her three younger siblings were all tested. My 9-year-old daughter and 7-year-old son were also diagnosed with Wilson’s Disease. They are currently undergoing chelation therapy and are doing well.
We sponsored the Big Wow to raise awareness of Wilson’s Disease and to build a support network for those battling this life-long disease.