Our family was hit hard in 2013 with 3 of our 4 kids being diagnosed with this deadly, life-altering disease. Since that time, we have had the sacred privilege of hearing story upon story of families that have been affected by WD. It is our deep desire to raise awareness of this rare and orphan disease, connect families that have or have been affected by WD, and of course to raise funds to further research for better medications for the future. My family and I invite anyone that wants to host a Big wow in their city to follow the link on this page for information and fill in the sign up form that will come to me.
Editor’s comment: Chris was the chairperson for the first two Big Wow fundraisers and is chairing again this year. Not only are Chris and his family warriors that are dealing with this disease but Chris is a warrior and champion raising funds for research and helping others do the same. Countless hours have been donated to this effort. Thank you Chris.